10 Essential Questions for Neurodivergent People to Ask Their Doctor

Asking the right questions is key to navigating healthcare. At Hopper Health, we understand the importance of empowering neurodivergent people to take charge of their healthcare. This blog provides ten essential questions for your healthcare provider, helping you understand and manage your health better.

​1. Can you explain my diagnosis, considering my sensory needs?

Understanding your diagnosis is crucial. Ask your doctor to explain it in a way that considers your sensory needs. This knowledge is vital for effective self-advocacy.

2. What are the treatment options for my diagnosis?

Explore different treatment options with your doctor. Understanding all available options helps you make informed decisions about your healthcare.

3. How can I navigate challenges related to my diagnosis?

Each diagnosis presents unique challenges. Discuss with your doctor how to effectively manage these challenges in your daily life.

4. Are there support groups or therapies for my diagnosis?

Connecting with others who share your diagnosis can be helpful. Ask about support groups or therapy options that cater to your specific needs. At Hopper, we provide support groups for our members to connect and receive support based on a variety of topics that are both important to, and suggested by, our members.

5. How does my diagnosis intersect with other health concerns?

Understanding how your diagnosis may interact with other health conditions is important. Discussing this with your doctor can lead to a more comprehensive healthcare plan.

6. Can you recommend specialists experienced with neurodivergent people?

Specialists who understand neurodiversity can greatly enhance your healthcare experience. Ask for recommendations on how to find them if Hopper Health isn’t available in your area.

7. What strategies can I use to advocate for myself in healthcare settings?

Self-advocacy is vital in healthcare. Seek advice on how to communicate your needs and preferences effectively.

8. Are there clinical trials or studies relevant to my diagnosis?

Ask about any ongoing research that could provide new insights or treatments for your condition. You can also search this on the government clinical trial website to find vetted trials for alternative treatments here.

9. Can we discuss accommodations?

Discussing accommodations with your doctor can help you obtain necessary support in various life areas, including education and employment. While your workplace should readily support accommodations, some managers require doctors notes for record keeping. Obtaining notes from your doctor proactively can help speed up the process.

10. How can I manage my mental health and emotional well-being?

Mental health is crucial. When we factor in neurodivergent burnout, medical ableism and how other forms of oppression intersect with the neurodivergent community we see how important it is to proactively seek out mental health support. Inquire about strategies for maintaining emotional balance and accessing mental health resources. If you’re ever in crisis we recommend calling NAMI, who can help you determine next steps for a safety plan.

 

These questions are a guide to help you take an active role in your healthcare journey. At Hopper Health, we address these concerns proactively and encourage you to use these questions in your healthcare visits.

Katya Siddall-Cipolla

Katya is an autistic + ADHD person and the founder and CEO of Hopper Health. She lives in Brooklyn with her family and two very spoiled cats.

https://www.hopper.health
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Intersectionality in Healthcare: Navigating Systemic Barriers for Neurodivergent People

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Understanding Sensory Sensitivities